ME/CFS Awareness

[sildil]

If you get a moment, toddle over to Mirien's post regarding the ME/CFS awareness week. You'll find it here (rotten at links, sorry) http://mirien.livejournal.com/144697.html

Having a daughter with ME has been an interesting journey to say the least and I am all too well aware of the public misconceptions that abound.

Comments

[el-esteleth.livejournal.com]

Thanks for the link. I wish there was something like this here in the US. Joined the FB group, though. :)

[sildil]

Cool :) thanks x

[seference.livejournal.com]

Thanks for this, as a sufferer of a mild form of this I'm glad to know fellow suffers and their families have some form of recognition, albeit very low on the radar.
It is frustrating to say the least that you have to explain why you are exhausted or full of pain. i'm lucky my symptoms are much milder now, but i know those for whom it is much worse.

[sildil]

Oh cool, I never knew you had it, or if I did it was a long while ago. And I'm really glad you are doing well, Lizzie is too now :) xxx